i suffer with the neurofibromoosis i have a child who has it really bad she has a colostomy and urostomy becau
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I've got it, i'm 41 and had a huge tumor on my kidney which meant i had to have it removed along with the Kidney, cancer too but ok now.
My father has just had the same thing but much smaller tumour and now i have to look at my 2 daughter who are under investigation, it seems they both have it.
You lost the end of your question but good luck, just remember your not alone.
What are you asking? i may be able to help
i have NF as well.. actually..
thats sad to hear about her problems..
i never met to many people with the disorder.. :)
what excatly is it that u would like to know?
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