Any Multiple Myloma survivors I could link up with?

My husband has received his 15th round of chemo. Dr said his lab #'s have hovered in the same spot for some time now so we may d/c the chemo. I'm scared! what if it's not time to stop? He's been on Alkeran. Any feedback from former survivors would be so apreciated.

Answers:
HI,

I will email you directly also.

WE have a large online community of patients and caregivers.

Some of us have LIVED ! with Myeloma for over 10 years.

A good place to start is the IMF:

www.imf.org

I am suprised they started with Meph; the "std" for first line treatment is Thal / dex.

Sounds like he is in remission - if his numbers are stabile, so stopping for a while is a good thing. Plus gives your body a "break" and lets it get back to normal (or something close to that.

Goo luck,

Jewells
30 months and still here

GOOD!
well think about what chemotherapy is,
it's literally injecting a non-specific poison into a person in order to kill the cancer. It devastates the person's own body as well. If lab results are not improving anymore, then you've reached the point where the harm has outweighed the benefit, as continued chemo with no improvement in the disease will only make him sicker.

Either he's moving you on to another treatment, or your husband is in enough remission that he can stop chemo for a while. Just remember though, even without treatment, you need to keep him going for regular labwork and check-ups for pretty much the rest of his life.
Please see the webpages for more details on Multiple myloma and Melphalan(generic name) Alkeran (brand name). You may contact the cancer support group for the survivors of Multiple myloma in the following addresses.
American Cancer Society 1599 Clifton Road, NE Atlanta, GA 30329 800-ACS-2345 www.cancer.orgNational Cancer Institute 800-422-6237 www.cancer.govNational Brain Tumor Foundation (NBTF) 22 Battery Street Suite 612 San Francisco, CA 94111-5520 800-934-CURE www.braintumor.orgNational Marrow Donor Program (NMDP Suite 500 3001 Broadway Street, NE Minneapolis, MN 55413-1753 800-627-7692 www.marrow.orgSHARE: Self-Help for Women With Breast or Ovarian Cancer 1501 Broadway, Suite 704A New York, NY 10036 866-891-2392 www.sharecancersupport.orgY-ME National Organization for Breast Cancer Information and Support 212 West Van Buren, Suite 1000 Chicago, IL 60607-3908 800-221-2141 800-986-9505 (Spanish) www.y-me.org
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God Bless!
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