Has anyone ever herd of Hemifacialmicrosomice?

My 6 month old granddaughter was diagnosed as possibly having this. Origionaly they thought it was hemihypertropy. My daughter said the DR told her to look it up. One side of her face is growing faster than the other, she always lays her head to one side, the DR thinks she may have a fused spine as well as other problems. They said this could affect her liver. So far this is all we have. They are taking her for further blood work and testing. Any help would be appreciated.

Answers:
are you sure on the spelling? I think you might mean hemfacial microsomia. i would suggest this website for some information. I didnt know much about this condition and i found this quite helpful;

http://www.ccakids.com/Syndrome/Microsomia.PDF#search='hemifacial%20microsomia

There are associations and support groups for this condition so maybe you could try to find the one closest to you. In such difficult times a little extra support is always welcome.

http://www.faces-cranio.org/Disord/Hemi.htm

Best of luck to you and your family

wow there aren't too many helpful articles on the internet fro that either, are there, there were a few articles on MACRO somice, but I don't knowif that is the same thing as MICRO

I just found one but i think it's a site for proffesionals or something because there is all kinds of technical terms, however i did find out that cosmetic surgery is often the route taken. it also pointed out that people with this are often of average intelligence, so you need not worry about her mental capabilities

You can have more info emailed to you if you like by contacting that email address. good luck and take care

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Do you mean"Hemifacial Microsomia"?
Please see the webpage for more details on Hemifacial Microsomia.
It's a condition in which the tissue on one side of the face is underdeveloped. The deformity in "hemifacial microsomia" varies alot in the degrees of severity and the area of the face involved, from mild to severe. The cause usually occur sporadically, but have been thought to be inherited in some families.
You can find alot of information on this if you do a search. The Web has alot of valuable information. There are a few different things it could be with the fused spine. Surely tests will give more info., i searched for" fused spine adolescent" and there are some real good sites. Good Luck and God be with you and your family!
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