Any people with cystic fibrosis out there?

My youngest son has cf and we're always being told that the outlook is getting better and better all the time.
But what really has changed and have you had experience of these changes.How have they helped you.

Answers:
i am an adult with CF, the changes i have seen in my life time do improve the possibility orf a longer and normal life. I had a bi-lateral lung transplant in 1995 at the age of 27, and it would not have been possible without pulmozyme coming along and into my regular drug routine.

the CF foundation has a web site that i check out from time to time and last time i checked there was an article on the site that the avarage life expectance was 36.5 years, that might not sound like many years, but when i was growing up life expectance was early teen.

so the drugs and the advances in other areas the chances of your son having a normal life should be pretty good.

Yes my name is Amanda and I am 21 years old. I was dianosised with Cystic Fibrosis when I was 8 months old. I get sick more often and go into the hospital a lot more than I want to I absolutely hate the hospital. I am about to be admitted on Monday August 28,2006.
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